My name is Caitlin and my husband Jeremy and I have one daughter, Ramona, who has Wolf-Hirschhorn Syndrome. Ramona is 5 years old and continues to make great progress, more than anyone ever thought possible. We live in Oregon and love the diverse landscape but get very sick of the rain! We stay busy keeping up with Ramona’s therapies and doctor appointments and of course, her spunky personality that always keeps us on our toes. I’m new to the Board and excited to represent Region 5 families. The 4p- Support Group has been an endless source of knowledge and friendship along this difficult journey of raising a complex child. We look forward to more gatherings and meeting as many families as we can.